Take control of your medical appointments and live better with primary sclerosing cholangitis (PSC). The PSC Support app equips you with knowledge to get the care that’s right for you, when you need it. The PSC Support app has been designed by patients for patients, and approved by PSC experts. It helps you live better with PSC and gives you the tools to:
• track your health and symptoms
• share and evidence how PSC has affected you since your last medical visit
• get the most out of your medical appointments and ask the right questions
• know what to expect from your care
• stay up-to-date with the latest PSC news and research
• recognise acute cholangitis signs and get the help you need
• access support
PSC Support is the patient organisation for anyone affected by PSC:
• We want a world without PSC - PSC Support is committed to help support and drive PSC research through funding research and supporting our amazing PSC researchers in their vital work.
• PSC Support is working to improve care - PSC Support is actively involved in initiatives to raise standards and quality of care in hospitals, and has helped develop clinical care guidelines for managing PSC and liver disease.
• PSC Support is pioneering wellbeing for PSC patients - PSC Support was the first patient organisation to evidence and represent the unmet needs of those affected by PSC and bridge the gap between traditional scientific knowledge of PSC and real world PSC, as experienced by patients. PSC Support commissions and funds research to address quality of life and wellbeing for PSC patients and the impact of PSC on families.
• PSC Support is here to help - We offer a helpline and messaging support service, and an active online group so you can ask questions or access support and information whenever you need it. Our PSC information is used by patients, researchers and healthcare professionals - knowledge is power.
PSC is a rare immune-mediated liver disease, and most people who have PSC also have inflammatory bowel disease (known as IBD or colitis or Crohn’s disease). Although PSC research is thriving, we do not yet have a cure for PSC, and some people go on to need a liver transplant. The PSC Support app helps people live better with PSC and manage their care.